Make September Gold

Jasmine Soa from Cheekee Hero Charity

Day 1159
Today marks day one of Childhood Cancer Awareness Month and for us that means raising awareness, honouring our Angels and their families, spreading joy and connecting.
How do we do that? With this 🎗. Gold is precious and so are they.
This year Lox’s gold bike is on display, hanging from our deck, shining in the sun. More on that later.
Our beautiful gold ribbon hangs proudly on our front door all year round. Today I admired it’s shine a bit more. More on that later too.
Lox had clinic today- nothing out of the ordinary happened just catch-ups and laughs, some reminiscing, the odd talk about chemo and Lox’s last upcoming lumbar puncture.
My heart stopped.
I remember our first night on the ward like it was yesterday and feeling utterly lost. Not understanding anything anymore. Sadness, complete sadness. Watching him sleep as I still do today.
We had been asked if we would take part in a survey that would prove very helpful for families. I remember everything being explained to us and the significance of its role in the research of the late effects of treatment.
The Oncologist would then go on to say the words that would help shape our path today.
“By taking part in this survey you have to know that Lachlan will not benefit from this.”
My heart stopped.
September is a special month for our whānau. It symbolises courage. It symbolises joy. It symbolises hope.
We found our connection with other childhood cancer families, in the gold ribbon 3 years ago. So our gold ribbon hanging on our door and Lox’s gold bike shining in the sun is our way of remembering kiddos everywhere who’s lives were either cut short or forever altered by childhood cancer and saying to their families WE SEE YOU. SHINING BRIGHT GOLD 🎗
We’re a whānau with a lived experience of a child facing insurmountable odds and it’s because of his journey that we answered our call to courage.
Cheekee Hero Charity is Lox.
#makeseptembergold #childhoodcancerawarenessmonth