Unusual condition means man can't stand the sound of his own family
A North Canterbury grandfather is desperate to spend time with his mokopuna, but an uncommon medical condition means he can’t tolerate their noise.
Rangiora’s Ivan Rupene-Ryan only received an official diagnosis of superior canal dehiscence syndrome (SCDS) in recent months, but has lived with the progressive intolerance to noise since his first episode almost two years ago.
He hopes his noise issues will be rectified through surgery. He is due to have otolaryngology surgery in two weeks and while he knows that comes with its own risks, he has to go through with it to give himself any chance at a return to normal life.
He wanted to share his story to let anyone else living with the condition know they were not alone and to try to improve others’ understanding of what it was like to live with such a condition constantly.
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