Intensive therapy paying off for young girl with rare condition
Amaria Emery, of Kaiapoi in North Canterbury, is one of just 10 children in New Zealand with CDKL5 – a neurological condition that means she is missing a protein needed for brain development.
Parents they spoke to encouraged them to get her into intensive therapy, and the family tries to visit the Timmermans Method Therapy Clinic in Adelaide once or twice a year, finances permitting. There, Amaria receives three-hour one-on-one therapy sessions a day for three weeks, and while exhausting for her, the results are paying off.
The Emerys said the main hope for Amaria was to get her walking, something they work on with her through her therapy exercises each day. They are optimistic of a medical answer for the condition in the future.
But their immediate goal is to conquer a half-marathon in Queenstown later this month – a challenge they have been trying to get over the line for some time. A Givealittle page has been set up for anyone wanting to support the runners, and in turn Amaria’s family which includes sisters Arabella, 8, and Alessandra, 7.
Poll: As a customer, what do you think about automation?
The Press investigates the growing reliance on your unpaid labour.
Automation (or the “unpaid shift”) is often described as efficient ... but it tends to benefit employers more than consumers.
We want to know: What do you think about automation?
Are you for, or against?
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9.3% For. Self-service is less frustrating and convenient.
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43.6% I want to be able to choose.
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47.1% Against. I want to deal with people.
Poll: Would you take a 1.5-hour hike for a shop? 🌿🐦
Canterbury, you have a hidden treasure right on your doorstep ... though it does come with a 1.5-hour walk up the stunning Rakaia Gorge Walkway.
Along the trail you’ll find The Fantail Shop showcasing small artworks by local artisans. Even better, every purchase supports the Fantail Trust, helping protect and restore biodiversity on the north bank of the gorge.
So we’re curious: would you take a 1.5-hour hike for a shop? (And for local biodiversity, of course 🌿)
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32.2% Yes!
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67.8% No thank you.
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