Intensive therapy paying off for young girl with rare condition
Amaria Emery, of Kaiapoi in North Canterbury, is one of just 10 children in New Zealand with CDKL5 – a neurological condition that means she is missing a protein needed for brain development.
Parents they spoke to encouraged them to get her into intensive therapy, and the family tries to visit the Timmermans Method Therapy Clinic in Adelaide once or twice a year, finances permitting. There, Amaria receives three-hour one-on-one therapy sessions a day for three weeks, and while exhausting for her, the results are paying off.
The Emerys said the main hope for Amaria was to get her walking, something they work on with her through her therapy exercises each day. They are optimistic of a medical answer for the condition in the future.
But their immediate goal is to conquer a half-marathon in Queenstown later this month – a challenge they have been trying to get over the line for some time. A Givealittle page has been set up for anyone wanting to support the runners, and in turn Amaria’s family which includes sisters Arabella, 8, and Alessandra, 7.
Poll: Should the government levy industries that contribute to financial hardship?
As reported in the Post, there’s a $30 million funding gap in financial mentoring. This has led to services closing and mentors stepping in unpaid just to keep helping people in need 🪙💰🪙
One proposed solution? Small levies on industries that profit from financial hardship — like banks, casinos, and similar companies.
So we want to hear what you think:
Should the government ask these industries to contribute?
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59.3% Yes, supporting people is important!
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25.4% No, individuals should take responsibility
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15.3% ... It is complicated
A Neighbourly Riddle! Don’t Overthink It… Or Do?😜
Do you think you know the answer? Simply 'Like' this post if you know the answer and the big reveal will be posted in the comments at 2pm on the day!
If you multiply this number by any other number, the answer will always be the same. What number is this?
Musicians Wanted
Clare Dolheguy from Rangiora
‘Rangiora Bells’ is seeking musicians to join the handbell choir. We are a friendly group of handbell ringers who enjoy making music and entertaining at community groups.
If you would like to come and have a go at ringing handbells, please come along to one of our practice sessions. No commitment necessary if you decide that this is not for you.
An ability to read basic music notation preferred.
Practice days – Thursdays 1pm – 2.30pm
In the lounge at Trinity Methodist Church
176 King Street
Rangiora
Clare Dolheguy
Phone 027 583 7504
claredoll6@gmail.com
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