Update 2 -Help our daughter get life saving surgery in Germany
Hi everyone,
Another update on my prior posts.
Some lovely people from Harcourts are helping to fundraise for Olivia's trip to Germany which is coming around fast! They are collecting donations of products or services from kind individuals or company's for an online Facebook auction and quiz night. See flyer attached.
Thanks very much for your support.
Kelly
An update,
Thanks for all the love and support. Olivia will be heading to Germany for tests/treatment at the end of September.
She was interviewed by the odt who ran her story yesterday, see link
www.odt.co.nz...
We would love to see change so that others can access the care and treatment they need.
Thanks again💕
Hi, My family of 4 (husband, 2 teenage girls and myself) have lived in Abbotsford for 20 years. Our eldest daughter, Olivia (16yrs) has had a 7 year battle with multiple chronic illnesses that have compounded and deteriorated to the point that she is now no longer able to eat or drink without extreme pain and vomiting. She is now reliant on a nasal tube for nutrition and hydration.
After 7 years of numerous tests, she finally has a diagnosis which is amazing! She has been diagnosed with at least 4 Abdominal Vascular Compression Syndromes (AVCS) that are most likely caused by a connective tissue disorder. She is hyper mobile and is awaiting a Hyper Mobile Elhers Danlos diagnosis.
The good news is that treatment for multiple AVCS is available but NOT in NZ as we do not have a surgeon with sufficient experience, as the condition is rare, especially combined with potential hyper mobility which makes surgery more complex. Olivia's doctor has referred her to the world leading surgeon in Germany for this life saving surgery.
At this stage we have been unable to get financial assistance from Te Whatu Ora, so we are faced with the mammoth task of raising $140,000 to cover the cost of surgery, travel, accommodation and associated costs. We ask that if you are able to, please consider donating to Olivia's give-a-little page (see link) or to share this post and link to the page with as many people as possible. All donations will be gratefully received, no donations are too small.
Without the surgery Olivia's quality of life will continue to deteriorate and she will eventually die.
Thank you so much for your support.
Kelly Adie
givealittle.co.nz...
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